A cure for milk allergies – Part 8: Will Brett be cured of his milk allergy?

Brett Nasuti is Children’s first patient to go through a new trial that could cure him of his severe food allergy. In this final video on our series, Brett finds out if he passes the final milk challenge in the study—which culminates in him drinking a full 8-ounce glass of milk—and if he’s cured. If he passes the challenge, there’s an enormous pizza party in store for him.

Click here to read our story about Brett, Children’s milk allergy trial and experts’ latest thinking about food allergies.

Other videos and posts in the series

pizzaIn last week’s video, Robyn Nasuti shares her tips on keeping her kitchen safe—no small feat, given that two out of her three children have severe food allergies. She also shows how she’s simplified home-made pizza night at her house.

In this video, we followed Brett Nasuti at school, where he runs Allergy Awareness Week to raise money for research. Hear what he and his classmates have to say.

Celebrity chef Ming Tsai, chef-owner of Blue Ginger restaurant in Wellesley, Massachusetts, is passionate about improving restaurant systems so people with food allergies can eat out safely. The father of a son who has had multiple severe food allergies, Tsai talks about what he’s learned as both a chef and a parent here.

In this video, the Nasutis take on their regular challenge of food shopping.

Watch a video of Brett taking his very first (tiny) sips of cow’s milk during Children’s trial.

Click here to see Children’s Allergy Program’s Director, Lynda Schneider, MD, explaining the milk allergy trial.

To watch the first video in the series, in which Brett and his mom, Robyn, talk about what it’s been like for their family to live with his life-threatening condition and their hopes for the trial’s outcome, click here.

To read Robyn’s account of what it was like when she found out about Brett’s severe allergies, click on excerpt from her diary.

Some related sites we’re reading

MOSAIC – Mother’s of Severely Allergic Infants and Children support group

Asthma and Allergy Foundation of America, New England chapter

Food Allergy Buzz blog

Anaphylaxis and Food Allergy Association of Minnesota support group

Food Allergy Assistant resource and support group

AllergySupport.org

Have a comment about the series or food allergies?

Have a story you’d like to share about your own experience? Share it here.

20 thoughts on “A cure for milk allergies – Part 8: Will Brett be cured of his milk allergy?

  1. Yay Brett!!! I’m so glad you had your pizza party. Now it’s time for an ice cream party, yes?

    I know you just want to be a regular kid, not some icon for all of us. But I have to tell you I have happy tears in my eyes right now and I will go to sleep tonight with a new little spot of hope in my heart. Thanks to you.

    Enjoy – and mooooooo!
    Sue

  2. Wow!! I am so excited for you Brett and Family. I, too, had happy tears in my eyes while watching the video. Life now gets a bit easier and a whole new world of food is open to you. Enjoy every minute. I hope we can someday say the same.

  3. Thanks so much for recording these & putting them up. My 8-yr old who has a dairy allergy really liked watching them & could completely relate to it.

  4. Thank you all for sharing your comments and good wishes. Brett and I have enjoyed sharing this experience with all of you. Brett is enjoying pizza, lazagna, parmesean cheese and smartfood. He doesn’t like regular cream cheese and still drinks Rice dream once in a while, but is so very happy to have had the chance to do this study. We are forever grateful to Children’s, our doctors, all of those we worked with at CTSUand Erin and the team in corporate affairs. We’ll be praying for those who are currently undergoing the Xolair desensitization treatment and hope their ending is as happy as ours!
    Peace
    Robyn Nasuti

  5. Robyn:

    Can you explain how sensitive Brett was to dairy before his Xolair treatment? Did he have reactions to tiny particles, cross contamination, touching dairy or dairy-containing products? How severe were his reactions. We have a 6 year old who’s so severely allergic (RAST test numbers are in the 2nd highest category) that a tiny amount sends him into anaphylactic shock. He’s been to the ER already 6 times in his 6 years. (Sigh) Very stressful. Thanks much.

  6. My teenage daughter is also extremely sensitive to milk and has been since she was an infant. The prospect of drinking milk as part of desensitization is terrifying to her. How did Brett deal with his fear?

  7. Hi Doreen,
    I can certainly appreciate your stress. I have two boys with different allergies. Brett’s milk allergy was his worst allergy. His rast was always 100+. It was only this last year that he wasn’t contact reactive. We only found out becuase someone spilled mik on him at school. When he was younger he would hive up if I kissed him after drinking milk. He had a bad reation one time after my daughter left a piece of deli turkey meat (contained milk) on the table. He sat in her place and put his arms in the same spot and immediately the eczema on his arms bagan to flare and he began to swell. It took him a whole day to recover. We had to use separate pots and pans for his food he was that sensitive. If you want to chat further about some strategies we used email me. My email is foodallergy@charter.net.
    Good luck and keep the faith that it will get easier! The power of positive thinking can make amazing things happen.

    Robyn
    Robyn

  8. Hi Tracey,
    Brett was nervous but he wsa on Xolair for 8 weeks before he started the desensitization and he himself noted the changes to his asthma & allergies over those weeks. He knew his allergies were shut off and in fact, he wants to go back on Xolair. He loved having no allergies.

    We also reminded him that after it was over the chances were really good that he would be able to eat pizza with his friends at school and that was a good motivator.
    Good luck!
    Robyn

  9. At what point during the study was he taken off Xolair? Is Xolair safe to take all the time or is it something that can only be taken for a short amount of time?

    Thank you so much and I am so excited for your family!

    Jennifer

    1. Hi Jennifer,

      I checked with Dr. Schneider, who led this study at Children’s. She says that in our study, Xolair is given for 16 weeks. Xolair is FDA-approved for
      chronic use in severe asthma in patients 12 years and older.

      Erin Graham

  10. Thank you Jennifer.
    Brett began Xolair on March 23 and had his last dose on July 23rd. I was told it took 6 weeks for the Xolair to be completely out of his system. So by Sept 2nd he no longer had any Xolair in his system. It is my understanding that Xolair has used to treat moderate persistent asthma by allergist for many years now. One would need to check with their insurance provider about whether or not they’d cover the cost of the treatment.

  11. Thank you for your response on Xolair. I hope to see the day that my son may be treated for his milk allergy. You have given us such hope!

    Many thanks to all of you and especially Brett and Robyn for being so brave.

    Best Wishes,
    Jennifer

  12. My sincere salute to the mother who finds more time to take care of her children. It’s no joke to deal with this kind of problem. It takes courage to deal with it and still wear that very big smile.

  13. My sincere salute to the mother who finds more time to take care of her children. It's no joke to deal with this kind of problem. It takes courage to deal with it and still wear that very big smile.

  14. This is so exciting! I have a 23 year old son in Boston who is allergic to milk, egg, peanut and tree nuts. He would love to participate in an adult version of this study if you decide to conduct one. 23 years is a long time to avoid milk and other foods.

    Thank you for all you do.

  15. This is so exciting! I have a 23 year old son in Boston who is allergic to milk, egg, peanut and tree nuts. He would love to participate in an adult version of this study if you decide to conduct one. 23 years is a long time to avoid milk and other foods.
    Thank you for all you do.

  16. I cried and cried at the end of these videos. I’m 19 years old and have a severe milk allergy. I almost died earlier this year because of it, and have just been having a lot of trouble coping with it, with not being afraid every time I eat a meal I didn’t make. This little boy and the work Children’s is doing are inspirational. It’s nice to know there may be hope for a little normalcy yet. He is so lucky, and I know I’d jump at the chance to do what he did.

Comments are closed.