A cure for milk allergies? Part 7: Cooking at home with the Nasutis

Robyn Nasuti shares her tips on keeping her kitchen safe–no small feat, given that two out of her three children have severe food allergies. She also shows how she’s simplified home-made pizza night at her house.

Other videos and posts in the series

In last week’s video, we followed Brett Nasuti at school, where he runs Allergy Awareness Week to raise money for research. Brett is Children’s first patient to go through a new trial that could cure him of his severe food allergies. Hear what he and his classmates have to say.

Celebrity chef Ming Tsai, chef-owner of Blue Ginger restaurant in Wellesley, Massachusetts, is passionate about improving restaurant systems so people with food allergies can eat out safely. The father of a son who has had multiple severe food allergies, Tsai talks about what he’s learned as both a chef and a parent here.

In this video, the Nasutis take on their regular challenge of food shopping.

Watch a video of Brett taking his very first (tiny) sips of cow’s milk during Children’s trial.

Click here to see Children’s Allergy Program’s Director, Lynda Schneider, MD, explaining the milk allergy trial.

To watch the first video in the series, in which Brett and his mom, Robyn, talk about what it’s been like for their family to live with his life-threatening condition and their hopes for the trial’s outcome, click here.

To read Robyn’s account of what it was like when she found out about Brett’s severe allergies, click on excerpt from her diary.

Check back next week to see if Brett succeeds!

Next week, we’ll post the final video in our series. Watch Brett take the long-awaited final milk challenge and find out if he passes- and is cured of his milk allergies.

Some related sites we’re reading

MOSAIC – Mother’s of Severely Allergic Infants and Children support group

Asthma and Allergy Foundation of America, New England chapter

Food Allergy Buzz blog

Anaphylaxis and Food Allergy Association of Minnesota support group

Food Allergy Assistant resource and support group

AllergySupport.org

Have a comment about the series or food allergies?

Have a story you’d like to share about your own experience? Share it here.

4 thoughts on “A cure for milk allergies? Part 7: Cooking at home with the Nasutis

  1. Hi Mrs. Nasutis, I have been following this story from the beginning and Im praying that all of our kids get better soon. I notice you had Mayonnaise & cheese that is Dairy free/Casein free, could you possibly tell me the names of the products and if they are only found in Whole Foods Market? I appreciate all the information you can give me.
    Sincerely
    Evelyn

  2. Hello Evelyn,
    Thank you for you thoughts. The mayonaise is called Veganaise it is Dairy & Egg free and you would find it in the refrigerated section of Whole foods. The company website is http://www.followyourheart.com I would check Hannaford’s Supermarket becuase they are carrying more specialty items lately. The sliced cheese we use is called “Vegan” mozzarella flavor by Galaxy foods this is also something I get at Wholefoods. You must check the label as there are many brands that are located in the same section, but have casein. I also use a block cheese to shred for pizza called “Vegan Gourmet” mozzarella flavor.It is a follow your heart product.
    I hope that is helpful.
    Have a great night.
    Robyn

  3. There are many regular mayonnaise brands out there that are dairy/casein free (but not egg free). We use regular Kraft mayonnaise for our dairy allergic son. We also love the Tofutti sliced cheeses, sour cream, and cream cheese. They’re about as close as we have gotten to the real thing (and believe me, we’ve tried them all). To get shredded cheese, I just take the slices, fold them up several times, and use a shredder. They carry the Tofutti items in the health food section of our local supermarket. But I have yet to find a truly tasty block cheese.
    I also didn’t realize in the very beginning that since the protein content of cow’s milk and soy milk is so similar, I could use soy milk to substitute for cow milk in almost every baking situation. Of course, if you’re child is also allergic to soy, that doesn’t help a whole lot. Just don’t try to use it in instant pudding 🙂

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