Search Results for: EA/TEF

Teaming up for EA/TEF

Like Lewis and Clark, Holmes and Watson or even Batman and Robin, Russell Jennings, MD, and Lori McGahan are an amazing team. Working together as doctor and parent advocate, Jennings and McGahan have done tremendous work raising awareness and funds for esophageal atresia/tracheo-esophageal fistula (EA/TEF), a rare congenital birth defect affecting one in every 4,000…

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Enjoying every day: Renee’s story

Hitting double digits is a milestone for any kid, but it’s particularly special for Renee Seaver and her family. Once told that their daughter likely wouldn’t survive until age one, her parents recently celebrated Renee’s tenth birthday with her. “Renee is the heart and soul of our family,” says her mother, Michelle. “We enjoy every…

Harper’s bright future after care for esophageal atresia

At age 4, Harper Robinson doesn’t really remember most of the clinicians who helped change her life — but that doesn’t stop her from greeting Dr. Russell Jennings with a big smile at a recent appointment. “Whenever Harper had surgery, he would cut her dressings into the shape of a heart,” says her mom, Jessica,…

The joy of cooking (and eating) after tracheomalacia

For most little kids, a trip to the supermarket is an annoying chore, made tolerable only by the opportunity to request sugary snacks as a reward. But when Charlotte McQueen accompanies her mother, Erin, to the store, it’s a journey marked by imagination and delight. “Mom, can we get that?” she asks, pointing to a…