Taking my own advice: When the professional becomes a parent

Treatment of Robin sequence.

As a disability expert, my whole career has been spent giving parents advice. I’ve given advice on parenting, doctors, child development, school and resources to support them. I was confident working with families and helping them navigate the often crazy and overwhelming world of special needs. But when I was 34 weeks pregnant with my own child, I found myself on the other side of the situation.

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Nathaniel’s heart: One for the record books

care for congenital heart defect

As 3-year-old Nathaniel Wesley nervously watched the big machine move toward his chest, he spotted a familiar face: It was the cartoon character Barney — in sticker form. “Give Barney a kiss!” his parents urged, and he smiled at the friendly purple dinosaur while the scanner took images of blood flow in his lungs.

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Seven lessons I’ve learned from Rett syndrome

Mom and AvaAs a mother of a child with Rett syndrome, a disability that affects the brain’s ability to plan or coordinate motor skills, the phrase “take for granted” takes on a whole new meaning. I cannot take for granted that Ava can recite her A, B, C’s or feed herself a snack or go to the bathroom on her own. Quite the opposite. Every day, I strive to properly appreciate the effort it takes for Ava to perform the most mundane tasks. I am the one being “schooled” on Rett syndrome.

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Private Parts II: More things parents of boys need to know

Testicular abnormalities in children.

While it can be uncomfortable for parents to talk about issues with their son’s private parts, abnormalities in the testicles and scrotum are common and treatable.

One of my favorite parts of my job is sitting down with anxious families and being able to make the uncomfortable comfortable for them. I hope I can do that for you here in this guide to the most common testicular abnormalities seen in young boys.

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