SPG47 research brings hope to families

Robbie and Molly, who both have SPG 47, hang out on a bench at Disney World
Robbie and Molly [PHOTOS COURTESY OF KASEY EDWARDS]

“Mama Kasey — I spy!” I smile. Robbie wants to play “I spy with my little eye.” She’s actually quite good and relishes the enthusiasm she gets when she’s right. In fact, recently, we were with someone who was unfamiliar with the routine. After Robbie answered correctly, she waited. Though complimented, it wasn’t enough. Robbie gently took this woman’s hand, looked her in the eye and said, “clap.”

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A Valentine’s Day wish to my daughter

Eesha, who had BEAR surgery for an ACL tear, on the street

Eesha Bhagwat is a 16-year-old high school junior who had a bridge-enhanced ACL repair (BEAR) last summer at Boston Children’s.

Dear Eesha,

Valentine’s Day is just a reminder that I love you to the moon and back. I want to let you know how much I adore you and admire your resilience in the face of difficult times. I know this past year has been very hard on you, with your ACL surgery. Although you had to sit out of all your favorite activities, including cheerleading, rugby and dance, you were still very upbeat and brave and remained a trouper throughout your recovery journey.

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‘Finally in the right place’: Peyton’s journey to Boston

peyton poses on the anniversary of treatment for an anorectal malformation
PHOTOS COURTESY OF THE MIKLAS FAMILY

When Peyton Miklas comes to Boston Children’s Hospital for an appointment, she isn’t just seeing Dr. Belinda Dickie, co-director of the Colorectal and Pelvic Malformation Center, or one of the other clinicians who care for her. The 18-month-old is also excited to visit with her buddy Bryson. The toddlers — who were born within a day of each other — and their moms have bonded over their shared diagnosis of a congenital difference.

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Bryson’s story: Getting support for an anorectal malformation

Bryson smiles after care for imperforate anus
PHOTOS: MICHAEL GODERRE/BOSTON CHILDREN’S HOSPITAL

The wait while a child has surgery can be excruciating for any parent, and Carrie and Brian Mueller are no exception. Even though it wasn’t the first procedure their son, Bryson, had undergone, they were still nervous when the time came for them to hand him over his clinical team. But before a nurse could begin wheeling the 4-month-old into the operating room, his surgeon, Dr. Belinda Dickie, stopped her. “I’d like to carry him in,” she told the Muellers.

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